Make an Impact
Fund the Fight
for Hope.
Every dollar raised goes directly to advancing treatment and research for pediatric rare disease at Rush University Medical Center. No overhead. No middleman. Just hope.
Donate NowWhere Your Money Goes
Straight to the Science
Team Charlie raises funds for the Rush University Medical Center N-of-1 Fund, which advances groundbreaking personalized clinical trials for children with rare diseases who have no other options.
The N-of-1 model treats each child as their own clinical trial — tailoring therapies to their specific genetic mutation. It's the frontier of rare disease medicine, and your donation makes it possible.
Gene Therapy Research
Funding development and manufacturing of personalized gene therapies for ultra-rare conditions like CLN1.
Clinical Trial Access
Covering the costs that allow children who have no other options to access experimental treatments.
Scientific Collaboration
Supporting partnerships between Rush University researchers and institutions worldwide.
Other Ways to Give
Every Act of Support Matters
Walk With Charlie
Join our annual fundraising walk in Naperville, IL. Free to attend — just show up and walk.
Learn More →Spread the Word
Share Charlie's story and mission with your network. Awareness is the first step toward change.
Read Charlie's Story →