Event Details
Everything You Need to Know
Date
Sunday, June 7, 2026
Start Time
10:00 AM – Noon (Walk at 10:30 AM)
Location
Prairie Elementary, 500 S. Charles Ave., Naperville, IL
Distance
1.1 Mile Walk
About the Walk
A Walk Fueled by Love
The Walk for Charlie brings together families, friends, and supporters to raise awareness for CLN1 disease — a fatal form of Batten Disease that affects children like Charlie.
Walk with Charlie supports the Rush University Medical Center N-of-1 Fund, which advances groundbreaking pediatric rare disease research through highly personalized clinical trials for children with no other options.
By joining us, you become part of Charlie's story of hope and innovation. Your support advances life changing research, uplifts families, and demonstrates the strength of a community that shows up when it matters most.
Register NowFree to Attend
Registration is free. All we ask is that you show up and walk with us.
All Ages Welcome
From grandparents to toddlers — everyone walks together.
Donations Encouraged
Every dollar raised funds pediatric rare disease treatment and research directly at Rush University.
T-Shirts Provided
Register early and receive your official Walk for Charlie t-shirt.
From the Walk
Walk with Charlie 2026
Congressman Bill Foster, Mayor Scott Wehrli, Charlie, Leigh, and Matthew Sims · Walk with Charlie 2026
Walk with Us
Registration is free. Every step makes a difference.
Register Now